During this surgery, which should last around 4 hours, H will have his palate repaired. After his ENT puts a tube in his left ear. How his palate will be "repaired" is a bit beyond me but it sounds complicated. And painful.
We know we will spend one night in the hospital in order to have H's airway monitored. We hope to be home the day after surgery. We expect the first 24 hours to be awful...the day after to be quite bad....and the days after to be pretty difficult. We know he'll be in pain and uncomfortable.....aaaaand he'll be flaming mad because, for THREE WHOLE WEEKS, he will be on a liquid diet. Liquids that can go through a cheese cloth. Essentially the consistency of water. Yikes.
I'm dreading it, but am thankful we get to be with him. Yes, part of me wishes these surgeries had happened in C* because the difficult part would be in the past. BUT having it done here guarantees that a highly respected and skilled surgeon will be doing the work. And having it done here means we will be with him. He'll be with the daddy and mommy who love him like crazy....he trusts us....and we won't leave his side. I'm not sure what surgery in C* would have looked like.
I'm having a tough time because I know this will be hard on all of us. We can deal with it being tough on us, but it will be really difficult to see H struggle so much. I'm also having a bit of a hard time because this "isn't fair" (it's likely there is way more to that statement than what you are thinking). I do know, though, that things could be so much worse. That makes me feel better but then it also doesn't....because it's not "fair" of me to use the struggles others go through to make myself feel better about what we are going through.
Anyway, if you are a person who prays, please keep us in your prayers. Especially on Wednesday the 23rd. Please pray for guidance for the surgeon, for peace for H (and us...)...that there are no complications and that H is calm when he wakes up...that he knows he is safe and loved....that we manage his pain well....that we know what he needs....that we are able to adequately feed him for those 3 weeks...etc. Many thanks :)